Well, I finally got the phone call we have been waiting for. The doctor here at the NBHC was able to get ahold of Yale and get the results on Alvin's biopsy. I am happy to say that the test came back....
Negative! He doesnt have Hirschbrung's Disease. Now, just need the genetic results back so that we can go from there.
Alvin has a checkup on September 1, so I am hoping that we have the genetic results back by then. That way we can go from there.
This originally was a blog detailing Alvin's journey through cranial banding. It's now about his life dealing with Neurofibromatosis, Dyspraxia, and Autism.
Friday, August 28, 2009
Wednesday, August 26, 2009
Waiting
Yes, waiting. The genetic testing was done two months ago; the biopsy was done a month ago. We still dont have results. I have called Yale repeatedly. Leaving messages with both humans and machines. I have never been called back. Yesterday, I involved the NBHC (Naval Branch Health Clinic). Hopefully, the Lt I talked to will be able to get further than I did. He said that he should know something within 24-72 hours. So, we wait yet again.
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