Alvin's Allies

This originally was a blog detailing Alvin's journey through cranial banding. It's now about his life dealing with Neurofibromatosis, Dyspraxia, and Autism.

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Alvin is an 11 year old boy.
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  • ▼  2019 (4)
    • ▼  Dec 2019 (2)
      • MRI recheck
      • Fifth Grade Band Concert
    • ►  Oct 2019 (1)
    • ►  Sep 2019 (1)
  • ►  2012 (1)
    • ►  Mar 2012 (1)
  • ►  2011 (4)
    • ►  Dec 2011 (1)
    • ►  Nov 2011 (1)
    • ►  Feb 2011 (2)
  • ►  2010 (6)
    • ►  Dec 2010 (1)
    • ►  Oct 2010 (1)
    • ►  Jul 2010 (1)
    • ►  Mar 2010 (2)
    • ►  Jan 2010 (1)
  • ►  2009 (12)
    • ►  Sep 2009 (1)
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  • ►  2008 (9)
    • ►  Dec 2008 (3)
    • ►  Nov 2008 (5)
    • ►  Oct 2008 (1)

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Alvin brachycephaly cranial technologies doc band update NF1 neuro school Boston MRI costume neurosurgery ACH Halloween Holiday

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  • MRI recheck
    Alvin is a flipping rock star! We arrived at Akron Children's bright and early this morning. We decided to attempt a non-sedated...
  • Developmental Assessment
    While I understand that this really has nothing to do with his cranial banding, it is related to his overall development, so I am sticking t...
  • Alvin's Photostudy
    Well, its officially been a week since Alvin was banded. He is adjusting well to it. He still gets upset when it's time to lay down with...
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