Well, we have a genetics appointment. July 6, we will be going down to Yale Genetics. We were very lucky to get that appointment. The geneticist only sees new patients once a month, and they were full until the end of September. Luckily, someone one cancelled and they are able to get us in in just two short weeks. So, here is to hoping that the command will allow Eric to have that day off.
Also, GI is going to perform a rectal biopsy on Alvin. Great, he is going to have to go an be put under and intubated again. Fun. Here is to hoping that can be scheduled while Eric is in port. It would suck to have to go through that without Eric being home.
But, we are on the road to finding out, once and for all, what is wrong with Alvin. It's only been a year, but whatever.
This originally was a blog detailing Alvin's journey through cranial banding. It's now about his life dealing with Neurofibromatosis, Dyspraxia, and Autism.
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