Yes, you read that right. Our referral to the NF clinic at Boston Children's Hospital was APPROVED! No appeals process. Nothing. We did have to go to a review, but once they got all the information from the doctor here and the doctor back in Ohio, they approved the referral. This is a big deal because Boston Children's is out of network.
We go on December 15 to the clinic. I cant wait. Finally someone who KNOWS what neurofibromatosis is and I dont have to explain to them. So, look for updates AFTER then!
This originally was a blog detailing Alvin's journey through cranial banding. It's now about his life dealing with Neurofibromatosis, Dyspraxia, and Autism.
